Chris Runs A Lot!: March 2012

Saturday, March 3, 2012

I'm doing it again

Last year many of you helped us raise over $3000 for Parent Project Muscular Dystrophy via Run For Our Sons as I ran the Boston Marathon in RFOS green. Together we made a difference! This year I'm asking for your support to do it once again, but I'm changing it up. Rather than one event, I'm doing three. Go here to learn more and to help make a difference.

FYI ... I may or may not resume this blog for 2012. I may or may not launch a new one. Stay tuned.

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It's been 5 years since William was diagnosed with Duchenne Muscular Dystropy, a progressive muscle disorder that causes loss of muscle function and independence. Advances in research and quality of life for those with Duchenne continue to improve yet there is still no cure.

Sadly, in William we've witnessed just how swiftly Duchenne can progress. Changes have come all too quickly and last February William stopped walking. This year has been a rough one for our family and full of many changes.

Despite this, William is an amazingly happy fourth grader. He is blessed to be surrounded by "wicked awesome" (William's words) friends and a team of dedicated teachers, aides, specialists and administrators who see the beauty and joy of his spirit and are drawn to it. William remains curious about the world around him and he loves to explore it through his quest to ride as many elevators as he can. Anne and I are amazed daily by his intelligence, sense of humor, and his understanding of everything from C++ to Mario Bros to the transcontinental railroad... He's much more sophisticated than either of us at age 9 going on 10.

William tackles needing to use a wheelchair to get around, seeing lots of doctors and therapists, and increasingly needing assistance for ordinary tasks with both dogged determination and an amazingly mature sense of pragmatism. William has started expressing his fears of what may happen to his body, but he remains an eternal optimist and moves on to more pressing issues like how he can program his iRobot Create.

William reminds us daily that in the darkness of life there are glimmers of happiness and joy.

I’m asking for your support

For 2012 I'm dedicating three races (Boston Marathon, Timberman Half-Ironman, & Disney Half-Marathon) to my son William and all boys affected by Duchenne. I’m using my hard earned Boston entry to bring awareness to Duchenne and support Parent Project Muscular Dystrophy (PPMD) and their Run for Our Sons initiative. PPMD is the largest nonprofit organization in the United States focused entirely on Duchenne and has improved the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne through research, advocacy, education, and compassion. We can't do this without you.

Click through to my fundraising page and make a donation.

Chris Runs A Lot!

Saturday, March 3, 2012

I'm doing it again

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